World Hemophilia Day celebrated all over the world on April 17
SHC India celebrated it in Delhi, Patna, Jammu, Srinagar and other cities with focus on spreading awareness on hemophilia.
The slogan is “COUNT ME IN” laying stress for hemophilia diagnosis in every city of India so that more and more children with hemophilia are located
In Patna a human chain was formed to express solidarity and support for the people affected by hemophilia.
In Jammu the people with hemophilia remembered Frank Schnabel the founder of Hemophilia movement across the world. This day is celebrated in his remembrance.
In Delhi, Society for Hemophilia Care- SHC India organized an awareness camp in DDU Hospital. Dr. A. Prasad, Medical Supdt announced the start of hemophilia treatment and availability of free Factors- a life saving medicine for treatment of hemophilia in DDU Hospital, New Delhi.
Dr. Ravi Pathak, Nodal Officer Hemophilia delivered a talk on hemophilia and Dr. Anurag Jain spoke on important orhtopeadic problems a child with hemophilia faces.
SHC India released a book “Hemophilia Aur Aap” on this occasion. Mr. Vijay Kaul, Executive Director, SHC India spoke on the contents of the book which is aimed at parents, relatives, teachers and others who deal with children suffering from hemophilia. Dr. Prasad laid emphasis on knowing hemophilia better as the knowledge gained can solve half the problem.
“Hemophilia Aur Aap” is in hindi and will cater to the needs of northern part of India. Kaul said that the same would be translated into other regional languages soon.
The book deals with awareness on hemophilia care in three parts: the first part is on the basics and answers questions like “What is Hemophilia?” “Who suffers from it” “What is the treatment” in a very simple way.
Second part deals with hemophilia management which tells in a lay man’s language about ordinary and serious bleeds and what the parents need to do at such occasions.
The third part deals with the emotional aspects a person with hemophilia under goes during various stage of his growth.
SHC India also released “Factor Kit”- which can be carried while traveling as an emergency aid in hemophilia.
For further details please contact
Garima Mohan, Mobile No. 9968308471
Source: Dwarka Parichay News & Information Services
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