Persons with Hemophilia in and around Delhi observed the World Hemophilia Day on 13th April at Northern Railways Central Hospital, New Delhi. It was organized by the Society for Hemophilia Care (SHC India), a national level NGO working pro-actively in the field of advocacy, creating awareness and providing educational and rehabilitation support to the needy.
As part of SHC India’s continued efforts to enable the hemophilia community across the country, a program was organized at Northern Railways hospital. Executive Director of SHC India Shri Vijay Kaul addressed the gathering and informed the community about the latest developments in the hemophilia care and facilities available in the country. On this occasion, Dr. Gupta of Northern Railways hospital along with his colleague gave a comprehensive power point presentation on hemophilia and updated the families on the safety issues of hemophilia treatment.
World Hemophilia Day is observed on April 17 every year across the world in the honor of the World Federation of Hemophilia’s founder, Frank Schnabel. World Hemophilia Day has served as an opportunity to increase awareness of hemophilia and other bleeding disorders and their impact on the global community.
Sagar Jha- a PwH with his group gave a brief but wonderful musical performance and showed that children with hemophilia do not lag behind in any area if they have access to hemophilia care. The Hidden Treasure in Youths was revealed when they shared their vision, motivation and willingness to take the challenges and help others live a normal life. Youth Leader Vaibhav Nehra along with other group members shared their success stories with great excitement.
Shri Vijay Kaul explained the use and benefits of the medical travelling kit which were distributed free of cost to patients. SHC India also distributed a book “Hemophilia aur aap” on this occasion. The programme ended with prize distribution followed by lunch.